Child Neuro Studies
Sunflower Syndrome - Self-Induced Photosensitive Epilepsy
PI: Fiona Baumer, MD
Epileptic encephalopathy with continuous spike-and-wave during sleep (CSWS): a review of current treatment practices
PI: Fiona Baumer, MD
Cortical Excitability, Synaptic Plasticity and Learning in Benign Epilepsy with Centrotemporal Spikes (BECTS)
PI: Fiona Baumer, MD
Consortium for Standardizing TMS (Transcranial Mangetic Stimulation) Language Mapping Protocols and Establishing Best Practice Guidelines for Using TMS in Presurgical Evaluation of Language in Children
PI: Fiona Baumer, MD
Consequences of Prolonged Febrile Seizures in Childhood
PI: William Gallentine, DO
Novel Early Imaging Markers Following Febrile Status Epilepticus
PI: William Gallentine, DO
Open-Label Safety and Efficacy Study of Cenobamate (YKP3089) in Pediatric Subjects with Partial-onset (Focal) Seizures
PI: William Gallentine, DO
Vascular Effects of Infection in Pediatric Stroke (VIPS II) Study
PI: Sarah Lee, MD
Stanford Children's Health Pediatric Stroke Database
PI: Sarah Lee, MD
International Pediatric Stroke Registry: Risk Factors and Outcome Observational Study
PI: Sarah Lee, MD
Seizures and Children's Outcomes after Stroke (SCOUTS)
PI: Sarah Lee, MD
Leducq Trans-Atlantic Network of Excellence On Circadian Effects in Stroke (CIRCA-Stroke)
PI: Sarah Lee, MD
acutE Perfusion Imaging in Childhood LVO (EPIC-LVO): A Prospective Neuroimaging Pilot Study
PI: Sarah Lee, MD
A Natural History Study of Rare Neurogenetic Disorders
PI: Rebecca Levy, MD, PhD
A Retrospective Case Series of Timothy Syndrome
PI: Rebecca Levy, MD, PhD
Pediatric Epilepsy Surgery: Decision-Making Survey in Patients with Tuberous Sclerosis
PI: Brenda Porter, MD, PhD
Preventing Epilepsy Using Vigabatrin in Infants with Tuberous Sclerosis Complex (PREVeNT Trial)
PI: Brenda Porter, MD, PhD
SLC13A5 Deficiency:A Prospective Natural History Study
PI: Brenda Porter, MD, PhD
Stopping Tuberous Sclerosis Complex Onset and Progression 2B: Sirolimus TSC Epilepsy Prevention Study (TSC-STEPS)
PI: Brenda Porter, MD, PhD
Autism Spectrum Disorder (ASD) and Intellectual Disability (ID) Determinants in Tuberous Sclerosis Complex (TSC)
PI: Brenda Porter, MD, PhD
A Randomized, Double-Blind, Placebo-Controlled Study To Investigate The Efficacy And Safety Of Carisbamate (YKP509) As Adjunctive Treatment For Seizures Associated With Lennox-Gastaut Syndrome In Children And Adults, With Optional Open-Label Extension (SK-LGS)
PI: Brenda Porter, MD, PhD
A Multimodal Biomarker-based Predictive Model for Infantile Spasms
PI: Ann Hyslop, MD
A Multi-Center Examination of Pediatric Epilepsy Surgery Evaluation in the US
PI: Ann Hyslop, MD
A phase 1-3, Double Bind, Randomized Placebo- Controlled Study to Evaluate the Efficacy, Safety, PharmacoKinetics and Pharmacodynamics Intrathecally Administered ION373 in Patients with Alexander Disease (Gene Transfer)
PI: Keith Van Haren, MD
Project BIG: The Stanford Brain Immune Gut Research Initiative
PI: Keith Van Haren, MD
A phase 3 Study of Lenti-D Drug Product After Myeloblative Conditioning Using Busulfan and Fludarabine in Subjetcs 17 Years of Age and Under With Cerebral Adrenoleukodystrophy (CALD) (BMT/GeneTransfer)
PI: Keith Van Haren, MD
The Effect of Vitamin D3 on Markers of Oxidative Stress in Boys with X-Linked Adrenoleukodystrophy (ALD)
PI: Keith Van Haren, MD
Biobank for Neuroinflammatory Disorders
PI: Keith Van Haren, MD
New Diagnostic Approaches in Leukodystrophy - The Myelin Disorders Biorepository and Natural History Project
PI: Keith Van Haren, MD
Neonatal Seizure Registry
PI: Courtney Wusthoff, MD
High Frequency Oscillations in Neonates
PI: Courtney Wusthoff, MD
Temporal-spatial quantification of neonatal seizure burden caused by arterial ischemic stroke
PI: Courtney Wusthoff, MD
Practices in the Evaluation of Pediatric Brain Death
PI: Courtney Wusthoff, MD
Critical Care EEG Monitoring Research Consortium
PI: Courtney Wusthoff, MD
Neonatal Seizure Registry- Developmental functional Evaluation (NSR-DEV)
PI: Courtney Wusthoff, MD
Creation and Development of Pediatric Neurocritical Care Database
PI: Courtney Wusthoff, MD
Continued Anticonvulsants After Resolution of Neonatal Seizures: A Patient-centered Comparative Effectiveness Study
PI: Courtney Wusthoff, MD
Study of Oral MC-1 for the Treatment of Patients with PNPO Deficiency
PI: Courtney Wusthoff, MD
MRI and EEG findings in preterm neonates with HIE
PI: Courtney Wusthoff, MD
Children with Lennox-Gastaut Syndrome (LGS) treated with Deep Brain Stimulation (DBS)
PI: Juliet Knowles, MD, PhD
MRI Microstructure Mapping to Improve Detection of Focal Cortical Dysplasia
PI: Juliet Knowles, MD, PhD
Outcomes Following Discharge in the Pediatric Neurocritical Care Population; Understanding the need
PI: Lindsey Rasmussen, MD
AAP Resident Research Grant: Near-infrared spectroscopy (NIRS) and blood pressure monitoring in pediatric acute ischemic stroke: an observational, prospective pilot study
PI: Lindsey Rasmussen, MD
Pediatric Influence of Cooling duration on Efficacy in Cardiac Arrest Patients (P-ICECAP)
PI: Lindsey Rasmussen, MD
Optic Disc Drusen in children
PI: Shannon Beres, MD
Continuation of the analysis of Cytokine Modulation with Tecfidera in Human Immune Cell Subsets using High Dimensional Flow Cytometry and CYTOF Mass Spectrometry
PI: Lawrence Steinman, MD
Single Cell RNA-seq and CITE-seq on B cells in the peripheral blood and CSF of MS patients prior and during therapy with ATA-188
PI: Lawrence Steinman, MD
MEK Inhibitor Mirdametinib (PD-0325901) in Patients With Neurofibromatosis Type 1 Associated Plexiform Neurofibromas
PI: Cynthia Campen, MD
A Phase 2b Trial of MEK ½ Inhibitor (MEKi) PD-0325901 in Adult and Pediatric Patients with Neurofibromatosis Type 1 (NF1)-Associated Inoperable Plexiform Neurofibromas (PNs) that are Causing Significant Morbidity
PI: Cynthia Campen, MD
Developing Evidence-Based Criteria for Initiating Treatment for NF1-Associated Optic Pathway Glioma: A Natural History Observational Study
PI: Cynthia Campen, MD
Neuroimaging Correlates of Neurocognitive Deficits in Children with NF1
PI: Cynthia Campen, MD